The Stand Up For Down's Low Down


Non Profit






September 2015
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We've been wanting to talk to Dr. Skotko for a while now.  Dr. Skotko is a board-certified medical geneticist and co-director of the Down Syndrome Program at Massachusetts General Hospital. He has authored numerous books, performed amazing studies, and continues to find new ways to pioneer enhancements and research within the DS community. All this passion driven by his sibling with Down syndrome.  For more information on Dr. Skotko, please visit We can't thank him enough for the incredible work he has done and continues to do, and we are so glad he has honored us with this interview.  Great talk and a great guy!

Direct download: SUFD_LowDown_20_-_Dr._Brian_Skotko.m4a
Category:Non Profit -- posted at: 10:53am EDT

SUFD LowDown #19 - Brian Donovan - Creator of Kelly's Hollywood

Brian Donovan is an actor, writer, director, and producer who has been working in Hollywood for over 20 years.  After years of filming, he has put together the incredible documentary Kelly's Hollywood.  This documentary is the unbelievably moving and inspiring story of Brian's relationship to his sister, Kelly, who has Down syndrome, and Kelly's dream of being a star.  So many other plot lines come up during the film, and I highly recommend this movie for really just about anyone!  I loved hearing about Brian's perspectives, insights, and passion.  One of my favorite conversations ever!  Enjoy the ride.

Direct download: SUFD_LowDown_19_-_Brian_Donovan_-_Director_of_Kellys_Hollywood.m4a
Category:Non Profit -- posted at: 10:54am EDT

Our 19th LowDown brings us the largest organization we've ever had on the podcast - The Special Olympics.  What the Special Olympics has done since their inception and founding by Eunice Shriver is nothing short of astonishing. Listen to CEO Janet Froetscher describe their history, what they're up to today, and how they have impacted this world.  Enjoy the ride!

Direct download: SUFD_LowDown_19_-_Special_Olympics_CEO_Janet_Froetscher.m4a
Category:Non Profit -- posted at: 10:18am EDT

SUFD LowDown #18 - Katie Driscoll and Diane Grover

The LowDown #18 brings two incredible women pioneering within the disability community.  Katie Driscoll is first up at the 2:35 mark.  Katie founded and runs Changing the Face of Beauty. She's been featured on The Today Show, CNN, and People Magazine, among others.  And now she gets to be a guest on the LD - how huge!  Then we bring on THE Diane Grover around the 1:10:25 mark.  Diane was the founder of The International Down Syndrome Coalition(IDSC), then after retiring from that she has now formed Dreamers Coffee House, which she is the owner and operator.  This is a very unique and cool idea which we hope has huge success.  Listen and enjoy the ride!

Direct download: SUFD_LowDown_18_-_Diane_Grover_and_Katie_Driscoll.m4a
Category:Non Profit -- posted at: 9:42am EDT

SUFD LowDown #17 - Jen Jacob(DSDN) and David Egan(NDSS)

DSDN VP Jen Jacob comes in at the 4:10 minute mark to discuss the Down Syndrome Diagnosis Network and their first Rockin' Moms Retreat in Minneapolis September 11-13. Then David Egan, Fellow at the NDSS, and incredible self-advocate comes in at the 46 minute mark to talk about his life, his accomplishments, and his perspectives.  Plus, get to know who they're inviting to dinner.

Direct download: SUFD_LowDown16_-_Jen_JacobDavid_Egan.m4a
Category:Non Profit -- posted at: 10:22am EDT

For the 15th LowDown I've put together 2 solid interviews.  Gail Williamson kicks in at the 3:30 mark and goes to 55:30.  Gail is the Founder of Down Syndrome In Arts and Media.  Essentially she is the agent to so many actors, models, and otherwise talented individuals with Down syndrome and other disabilities that are appearing on TV, Film, Stage, and in print.  Paul Daugherty(56:30) is a sports columnist for The Cincinnati Enquirer and has written several books.  His latest, An Uncomplicated Life, shares the journey he and his wife have had in raising their daughter, Jillian, into adulthood.  Jillian has Down syndrome and recently got married.  Enjoy the ride.

Direct download: SUFD_LowDown_15_-Gail_WilliamsonPaul_Daughtery.m4a
Category:general -- posted at: 2:52pm EDT

Rob talks with Amanda Lukoff who is directing and producing The R-Word Film.  This documentary is tackling the R-Word both at home and abroad and interviewing some very key people who are big in this fight.  Listen to the very fun, funny, and ambitious Amanda talk about her passion for her sister and those with special needs that brought her to do this project.  And as a bonus, you get to hear an interview with my 11 year old son, Charlie.  He also talks about the R-word and how he's dealt with it at school and among his friends. (by the way, he handles it better than anyone I know!).  Listen in and enjoy the ride!

Direct download: SUFD_LowDown_14_-_Amanda_Lukoff_-_The_R-Word_Film.m4a
Category:Non Profit -- posted at: 8:28pm EDT

Very informative podcast with someone who has incredible experience as an attorney advocating for those with disabilities, and as a director of many non-profits.  Peter Berns is the CEO of the Arc of the United States and provides some amazing insight into the disability community and ways we can be working together to make some significant improvents in the lives of all those with disabilities.

Direct download: SUFD_LowDown_12-_The_Arc_of_the_US_-_Peter_Berns.m4a
Category:Non Profit -- posted at: 1:48pm EDT

Kris Polaha is an actor who has been in numerous televison and films.  Most recently he can be seen in the new FOX series, Backstrom with Rainn Wilson, but for this podcast, we are talking about his leading role as a retired, alcoholic baseball player in the movie Where Hope Grows.  A great guy who sheds some incredible perspective on life and working with his co-star David Desanctis, who has Down syndrome.  Kris also gives some good behind the scenes scoop on his time in Hollywood.  And of course, don't miss who his Top 5 dinner guests are. Enjoy the ride!

Direct download: SUFD_LowDown_12-Where_Hope_Grows_Star-Kris_Polaha.m4a
Category:Non Profit -- posted at: 1:50pm EDT

Best Buddies International is a huge and amazing organization helping build relationships between people with disabilities and those without disabilities all over the world.  Started by Anthony Shriver in 1989, they have grown to 1900 chapters worldwide and working with over 900,000 individuals in that time.  They have a great vision for the future, and David is leading them there.  Great stories from David who has had a personal drive to grow this organization from the time he was in college. Enjoy the Ride!